Continue reading...

St. Augustine embraces boy with rare craniofacial syndrome June 21, 2023 – Posted in: Pfeiffer Syndrome

Community’s “angels” have been great comfort. Matt Soergel _ Jacksonville.com September 27th, 2010 ST. AUGUSTINE – William Thompson can’t eat much solid food, but he loves going to the Applebee’s near his house. They fuss over him there, and he likes being fussed over. Sure enough – the fussing commences no sooner than he gets through the door. Waitresses and managers crowd around him, noting his new wheelchair, commenting on his new Batman hat. A…

Continue reading
Continue reading...

Teen with Pfeiffer Syndrome and his mom bring Christmas surprise to families. December 22, 2021 – Posted in: Christmas, Lifestyle, Pfeiffer Syndrome

Lisa Feller: ‘We wanted to give back after all these years’ Sheldon Gardner St. Augustine Record December 22, 2021 After years of receiving care from a local organization, William Thompson and his mother decided to give back. The 17-year-old has lived with Pfeiffer syndrome since he was born. It’s an extremely rare craniofacial disorder that prevented his skull from growing with the rest of his body. The disorder caused his skull to fuse during development in the womb,…

Continue reading